It's JUST hair...

I say that all the time, I said it when my sister lost her hair to chemo, I said it when I got 8" cut off. It's just hair, it will grow back.

But, the fact that Nathan's hair isn't "right" and hasn't been for a while bothers me... a lot.

I mentioned to one of his neuros a while back that his hair felt just odd to me, straw-like. He looked at me like I'd grown a 3rd head and said to switch shampoo's. Well, I may not be a dr, but damn it, I know my child. I know every inch on his body, every hair on his body. And when trileptal made him get very hairy - I mean hair on his legs like he was practically a teenager, I noticed it.

And when he went off the trileptal, I figured (correctly) that his body hair would go back to normal. So, don't tell me that meds aren't affecting his hair (on his head or otherwise). These meds they're forcing into him do very, very strange things to him and changing his hair is not out of the realm of possibilities.

Saturday we were at the pool. The weather was just perfect, low 80's but considering the 100* weather we'd been having and then a huge storm, the pool was a bit chilly. So, after swimming a bit, Nathan got out and sat on the lounge chair with me, rather laid on ME on the lounge chair. So, I began stroking his head and really examining the straw-like patches, mostly in the back of his head. Then, I noticed just how THIN it is, mostly on the top of his head. I mean really, really thin. In some places his hair will naturally part and you can see his scalp without moving hair out of the way.

Nathan's always had gorgeous, really blond, slightly wavy, thick hair. I guess what bothers me about his hair falling out is that if it continues, he will really have an outward indicator that something is going wrong in his body (as if the huge scars on his neck and chest weren't enough). But, our goal is no meds. We did the surgery and we're continuing with the diet and now seeing this naturopath to heal his body so that one day we can be free of these poisons, I mean medications we're forcing him to take. I can only hope that these recent changes in his hair are just another freak side-effect of meds that will go away in time.

Because, after all, it's just hair, right?