Good news and bad news...
So, we've been having one hell of a time with Nathan lately. The tantrums were getting out of control. I called the neuro today because Nathan had 2 very significant sz's this morning and over the past few days has been clustering a lot - clustering meaning small flickers of sz activity really close together. Another thing that didn't quite sit right with me was that his voice wasn't changing during a discharge so we couldnt' tell when the VNS was going off or if swiping him was working either.
I also called the chiro/naturopath we're working with. We're giving Nathan a homeopathic med to reduce the acidity in his body. Well, ketosis by nature causes your body to be acidic but supposedly a different kind of acid. Either way, this chiro is great and said that he never doubts a mothers intuition. So, we're going to stop giving him those pills until we see him next Tueday. Reason being, we can't get Nathan into heavy ketosis, only moderate. And, I believe we'll get better results if we can get him in heavy ketosis -- so we're going to test that theory out.
OK, back to Dr. B and the VNS. Turns out that during the diagnostic run on the VNS last Friday, Nathan's devise was inadvertantly shut off. So, he's had NO discharges since last Friday afternoon. Hello foul mood, hello sz's. Since having it turned back on, he's been in a really pretty good mood.
But the best???? I had just finished putting the babies down and came downstairs. When I walked into the kitchen, Nathan called me from around the corner -- he was in the bathroom and had POOPED!!! ALL ON HIS OWN!!!!! I almost started crying I was so proud of him. I gave him an entire cookie (made with almond flour and stevia, lol)
So, the good news is we know for sure that the VNS is working for him. The bad news is we had to go through a week of tantrums that put a 2yo to shame. I'll take it though.
I'm curious now to see if we are actually able to get him into heavy ketosis this week. Hmmm....
1 Comments:
Oh Nancy, that's fantastic that it's working - I'm just bummed that you had to go through all that to figure it out! And double yay on the pt - it will happen, wahoo!
XO,S
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