I can't breathe...
I'm scared to death of jinxing our streak. Any time I comment on how long it's been since Nathan's had a sz, he invariably has one.
We're going on 3 days now. Nathan's teacher wanted to know what we'd done differently on Wednesday afternoon when G picked him up from school because that was 2 days in a row where he'd had excellent days. Today was more of that. I wanted to say to him, "I'm glad you've finally gotten to meet the real Nathan". (well I would have had I been the one to pick him up, lol).
My mom was floored last night when we stopped by her house. He was talking to her, responding to questions, following directions, being polite... she even commented on how he seems to be walking differently - very subtle difference but more "normal".
Lately though, he's been volunteering to take naps - like twice a day. He's doing that at school and thankfully they're letting him - when it appears that he's truly not tired and not using laying down as an avoidance tactic, because he will do that. His meds certainly can make him sleepy.
But, Monday night we started a new supplement. This one is specifically to deal with anxiety, moods, concentration, memory... those kinds of things. I really love Nathan's chiropractor. He doesn't do adjustments on him, he's really just guiding us in homeopathic remedies and doing slight energy work on him. When I walk into his office, I just have a peaceful feeling come over me. Monday night at our appt, he said, "I won't lose", meaning he would figure out something that would help us gain control of his sz's. He's always got Nathan on his mind and each time we talk, he's telling me about something he researched or read or thought about that might be good for him. I wish all dr's were like Dr. F. I'm going to start seeing him for my own health. My first appt is next Monday.
Dr B today said she'd like to hear a report from us in 2 weeks. If we keep this trend up, then she's going to seriously consider cancelling or at least post-poning this latest round of testing. I wouldn't mind that at all.
This is the first time in 15 months that something is profoundly different. Yes, we've had minor successes along the way, but every time we've hit the end of the honeymoon phase, all hell breaks loose again.
On the one hand, I want to celebrate this miracle. On the other hand, the devastation that will come should a sz occur if I've gotten too excited or overly confident will crush us.
So, I'm just taking it hour by hour and day by day. Today, I am profoundly grateful for yesterday. Tomorrow I will be profoundly grateful for today. I'll talk about next week, next week.
2 Comments:
Nancy, that's is teriffic. many prayers that he is healed.
oops, that was me above
Post a Comment
Subscribe to Post Comments [Atom]
<< Home