Sunshine...

Nathan's last seizure was Monday, October 2nd. I began seeing arm twitches (which we believe are simple partials but can be precursors to complex partials and even generalized sz's) on Saturday. I didn't have a good feeling about that. I saw more Sunday morning and then 2 sz's that day. Monday, more arm twitches and 1 sz at school. At that point, we increased his felbatol (after consulting with Dr. B). He went from a total of 9 cc's to 10.5 cc's (over 3 doses a day).

Drum roll..... it's been a week and we have not seen any activity. I have noticed though, staring episodes where he's just staring off into space. These could be simply just a side effect of the med and he's just daydreaming or whatever... or they could be absence sz's. But, usually calling his name will pull him out of it. Not to have a black cloud over our heads... but sometimes it's hard to trust a good thing.

We thought we might get out of going into the hospital on the 23rd for more testing. But, since the breakthrough's last week, Dr. B thinks it's a good idea to proceed with testing. To be honest, I'm really curious to see what, if any, sz activity he's having.

I have to believe he's had a significant decrease in activity though. He's sleeping better, his mood is better, he's getting words back every day and he's done such a turn around at school that they've nicknamed him, "Sunshine". It was exactly 2 weeks ago today that Nathan bit his teacher and sent her to urgent care (again). What a 180* he's done!!!

I don't know how long this is going to last -- forever I hope, but I am so grateful for these last two weeks. He and Emily were actually playing together yesterday.

Thank you God!!!!!