Monday, October 16, 2006

Today marks two weeks...

Two glorious weeks since Nathan's last sz and three weeks since we had the extreme turnaround.

Our hospital stay for the 23rd has been reduced to just a baseline eeg. Dr B said we could cancel it... we've been through enough. But, when asked what she recommended she said she's curious to see what a "normal" eeg from him looks like -- see what his normal brain activity looks like. And, to be honest, I'm curious as all hell to see if he's having any sub-clinical activity.

I hope to God not. And, I feel pretty confident that he's having great stretches of normal activity. I wouldn't be surprised about a little bit here and there. But, his recent change makes me think we're so totally on the right path.

Dr. B did ask how he's doing cognitively and if we had concerns. Or, rather if we start having concerns we should get back to serious testing. We're still going to do the PET scan -- not exactly sure why or what she's looking for. But, I believe it's relatively easy????

Nathan is doing much better in school. He's gaining words back every day. He's showing a great range of emotions. And he's just understanding things. Oh, and he's following one and two step directions way more than he used to as well.

We're still pretty strict with what we'll let him eat though. I would say that close to 100% of the carbs he gets now are either from fruit or gluten-free pastas. I just feel that gluten was playing a part in his body not being healthy. And staying gluten-free so far has proved to be much easier than being on 10-15 carbs a day.

So... why would my MIL send the kids a big bag of halloween candy????? Ok, that's another rant that I don't have the time for anymore. :-P

One other thing. Nathan's teacher is male -- large (think ex-football player) and bald. I think Nathan really likes him and I also think he's good for Nathan too. Anyway, his last name is kind of long and as it is, nathan isn't very good at remembering names. So, he calls him, "the big guy". lmao. He came home from school today and showed me this picture he made -- he put a leaf under a piece of paper and shaded it in, kwim? He said, "look what I did with the big guy today". It just cracks me up.

Anyway, I just love who Nathan is. His spirit is so gentle and kind and loving. I have been so blessed by him. God, please let him stay!!!!!

0 Comments:

Post a Comment

Subscribe to Post Comments [Atom]

<< Home