Knowing what I now know...

I have always hated the inconsistency in Nathan's behavior. Well, "hated" might not be the right word... I hate that he's going through that and the inconsistency is upsetting and frustrating. But, I realized this morning that his inconsistent behavior has a purpose. Some kids can have a seizure, even repeated seizures and never experience setbacks. Apparently Nathan is not one of those kids. So, his inconsistent behavior is a barometer for us as to how he's doing. We now know that his sz's aren't presenting like they had been previously. Whether they're just so slowed down, or even subclinical... they're still messing with him even if we can't see them happening.

I'm going to give a spiral notebook to his teachers. I'm hoping they pass it to his therapists daily as well. I'm going to ask them to write in it daily - just a sentence or two - nothing elaborate. But, a sentence saying whether he was "on" that day or "off".

We would never have gone into the hospital for the overnight study had Nathan not stopped progressing cognitively. So, what I'd like to establish is a good pattern... or a not so good pattern.
I don't want to jinx myself, but since increasing the felbatol, he's definitely been more "with it" since then. He obviously needed it.