Saturday, April 07, 2007

Med increase isn't going so well...

I got an email from one of Nathan's teachers last week letting me know he's been limping tripping and stumbling a lot. I had noticed it the night before but brushed it off to him being tired, as it was on his way to bed when I saw it.

I called the neuro, who was out so I talked to someone in her dept. His walk being affected is most likely a side effect of his meds being too high. We came home from the hospital increasing his 3 doses by 1cc - so we went from 12cc's a day to 15. We had to back down on the middle dose increase right away as we could just tell he wasn't tolerating it.

We've now backed down on the 3rd cc. So, at this point, he's only getting 1 additional cc a day (in the morning).

I don't feel he's functioning as well cognitively as he had been last week. And then to add insult to injury, I noticed him limping last night, just like I'd noticed that one night before bed. He's not doing it all the time - but I wonder if any time is not good at all.

We have an appt with the naturopath on Monday. I'm curious to hear what he has to say. I'll also be calling his main neuro on Monday as well. I have concerns that the felbatol is not interacting well with the valproic acid. I would like to get him off that med. It never gave him sz control at a high level, why would it be working now? Yes, I know the combined effect can be a positive one, but my moms gut tells me no. We'll see. I'll tell ya though, I don't like the stumbling.

1 Comments:

At 5:14 PM , Anonymous Anonymous said...

Interesting to know.

 

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