So close yet so far...

Dr B said we're probably 95% controlled. How distressing that the 5% he's still having is causing so much issue for him.

We've gotten to a place where he's not having the stumbling issues with his meds, but the cognitive increases we saw when we bumped the meds up are gone as well. He's been randomly vomiting also and complaining of his belly hurting. So, not good signs either.

We're taking his valproic acid down - finally! This med never did anything for him, imo, in the first place. I don't believe it's helping the felbatol to work. But, we'll see. hopefully we won't see anything "bad" in decreasing this med. And, it actually might make the felbatol work better.

We have to have labs run though. That won't be fun for him. But, all of these symptoms he's having could be signs of getting toxic on the meds - dangerously. I don't think that's the case but we've got to be careful and check everything out.

There is a new med out on the market, Lyrica. We might try that one next if we don't get 100% control once we're off the valproic acid. The "bad" thing about it is that it can increase generalized sz's. It's good about controlling complex partials. Since Nathan has complex partials that secondary generalize, we have to be absolutely sure that the generalized sz's are fully under control before we try this med.

Damn it's never easy. OH, one good thing about Lyrica is that it can make you gain weight. Nathan is so skinny it's not even funny. That would definitely be a good side effect for him. I'm getting ahead of myself though. That's months down the line IF we decide to try it.

We're just hoping we see good things from the valprioc acid wean. Fingers crossed.